30 April 2008

Back on the medical merry-go-round..

Ever since E's grommets have fallen out, about 6-7 months ago, she has had constant ear infections....AGAIN!
Our weeks have gone like this...E complaining of something Not Quite Right....visit Dr "oooh yes her ears are quite red & there is a lot of fluid, here's some antibiotics, come back in a week or 2"....E's fine again, go back to Dr "yep, all clear"....a week later E complains of something Not Quite Right....visit Dr "oooh yes her ears are quite red & there is a lot of fluid, here's some antibiotics..." and well, I guess you get the picture.
In December I noticed she wasn't hearing too well. And it coincided with her ears again not feeling right....and about 1-2 weeks since her last dose of antibiotics. Seeing a pattern?
We were away, so we went to see the dr again once we returned home. This time we got a referral to get her hearing tested.
The appointment was made.
It finally came yesterday.....yep it took over 4 months just to get the test.
In between we have had the same cycle. Ear bad..take meds...ear good...finish meds...ear bad..take meds etc etc. Her hearing has come & gone....but mostly it's gone! But we waited patiently.
Test results from yesterday? She's deaf! OK not completely deaf, but she has about 50% hearing in her left ear & 60-70% in her right. It is all treatable of course but it's just the extremely long waiting game that drives me insane. The tester said she would be really struggling to hear in class, and if she's grumpy & tired from school that would be why. Well she's a right bitch after school! She has been struggling in class. Emotionally mostly, she's very clever. I had put most of it down to her dad & I separating.

Now once again I am fraught with feelings of inadequacy as a parent. Why didn't I put 2 and 2 together? J had the same issues...his hearing was worse...but he's had no problems since the grommets...or has he?

They both have speech issues that I don't even hear? The tester asked me how her speech was, I said fine...then she noted a lisp! What lisp? That's not a lisp, that's just E.
I know she has some small issues...like trouble with "Th" saying it "f"...but I did that as a kid! Plus with her ED and her lack of teeth, the spacing, size etc....I guess I put down any small differences to that!

So now I want to get J's hearing tested too...just to be sure....as it has been pointed out to me that he still speaks like he has adenoid problems...which were fixed nearly 2 years ago.....and as I am a bad mother, I don't notice and need these things pointed out!

AS far as E goes we are back on the merry-go-round. She is back on antibiotics, because her ears are infected again. And I called 5 ENT's and the earliest I can get in is June 6th.

Then What?

More Grommets?

I HATE having my kids put under....:-(...I sooo don't want to do that again! It was AWFUL! But at the same time why does the process take so fucking long! It's a joke! Once I finally get into the ENT it could take months again for the op....I think we waited 7 months last time...and we pushed it!

So in the meantime, we keep pumping in the antibiotics, which I hate, tell her teacher to speak in her right ear & sit her up the front of the class, and hope the child doesn't get any MORE screwed up & miserable!


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